Wanted to take a few moments and share some significant words and updates about Elijah:
Most of you know that about 8 weeks ago Elijah was given permission to put up his crutches and wheelchair and he was put on restrictions of walking only. Doc felt fairly confident a few weeks later and gave him the green light to do some light jogging; still no running and jumping. This was news to our ears and hearts. It was beautiful to watch him walk unassisted from help aids….beautiful. He still had and has a Perthes limp when he’s walking, but HE WAS WALKING. When several of his friends had been over they even verbally spoke out and said, “It feels so good to see Elijah walking by himself.” You know how giddy you got to see your kids go from crawling to walking? Yep, that’s the elation we felt even though we knew he had a LONG way to go.
Doc instructed us like always to continue to get monthly x-rays as he was monitoring Elijah’s hip from Baltimore. Last week we took Elijah for his x-ray and Shayne and I both analyzed it to death as we felt that it didn’t look as strong and full as his last x-ray. After days and days of waiting (which felt like months) on Doc’s feedback, he finally confirmed that there was reason for concern, especially due to the nature of Elijah’s recent surgery. He said, “We are in unchartered territory.” He is a bit perplexed because Elijah’s range of motion is stellar and he continues to improve at his PT sessions 3 times a week. In a nutshell, the X-ray doesn’t seem to be matching up with his motion. He did not change Elijah’s weight bearing restrictions, but asked us to bring Elijah to Baltimore as soon as possible. So, we will be joining the 6th grade Tigers for their football playoff game Sunday night to cheer them to victory and then off to Baltimore.
People ask us all the time how Elijah is doing and when this will all be over and when he’ll be back to doing all the activities he loves. Sadly, it isn’t a broken arm, a torn ACL, or some other injury that he’ll just bounce back from; it is life altering. We are 18 months, 18 months, 18 months into this battle and each day feels hijacked by this dreadful, pesky, painful, unpredictable disease. So, I’m not really sure when we’ll be on the other side of it, if ever. Each morning we just cling to the fact that at the end of the day we have a boy whose heart and mind are healthy and surrender to the fact that the Lord is in control.
Our boy desires so desperately to have his body back and has been working hard at PT and being disciplined during our at home stretching sessions. Elijah has the courage to believe that even through these times of limitations and uncertainty that he WILL GROW STRONGER THROUGH IT. Funny how sometimes your kids encourage you more than you encourage them. Please partner with us as we need the strength to keep our heads in the game, patience to withstand the waiting, discernment with our Doctor’s findings, and perseverance to keep #tacklingperthes.
Grateful for each of you who care for us. Your loving kindness sustains us.
More to come on our QB.
All our love,
Tiff & Shayne