It’s been a week since I’ve had time to simply be still and gather my thoughts and I wanted to briefly share how Elijah is doing at our home away from home, otherwise known as Baltimore.
Early this week Elijah was released from the hospital and he and I made our way to the Ronald McDonald House of Baltimore. Shayne was still in Cincy and I was a nervous wreck attempting to get E out of the hospital, lifted up into the back seat of Shayne’s forever tall truck with Elijah being sick and unable to move and hoist his leg into the truck, driving in the streets of an unknown downtown, and single handedly getting E out of the truck and up into our room. However, we did it! It was quite comical on my part because I was a nervous nelly, but Elijah was quite patient with me even though he was still not feeling well…..at all. He couldn’t shake the nausea, dizziness, soreness, and drowsiness.
Upon our admission to The Ronald McDonald House I immediately began meeting other families and taking an interest in their stories; each one of them so dear, so heartbreaking, so full of hope. Although I do not wish our Elijah to be in this situation, I do feel that I’ve had the privilege to experience compassion on an even deeper level. In his struggle he has taught me that. What a gift. The precious people here have been such an encouragement.
For the first few days here he was still very sick and Wednesday was particularly tough, however by Thursday he was starting to level out and become more like himself, although he’s still fighting soreness in his good hip that they bone graphed. Hoping this subsides soon. All week Elijah has been undergoing PT and pool therapy. The staff at Sinai Hospital is outstanding. I am in awe of what they do. For Elijah, PT is the closest thing he has to competing/feeling like he’s pushing himself out on the field with his friends, and so, although it’s hard, he rises to the occasion. He was especially excited when he got to get in the pool for therapy for the first time. If you know Elijah very well you know he’s an experience every ounce of life kind of kid and the pool therapy was no different. For us, it’s the first time that his Perthes hip/leg is left to be more open to do what it was designed to do…..walk. We get choked up watching him. There he is….FREE. The physical therapists have all been tremendous with him as they challenge him, kid with him, and encourage him to keep pushing harder.
Elijah has spent time reading (he may be out of school, but he can’t escape my reading wrath 🙂 – ha! He has gotten some thoughtful gifts, surprises, calls, and messages from his friends and family, enjoyed house dinners and in house movies w/families of RMH (Under Armour even came one night and provided dinner and bingo), shot some hoops from his wheelchair (see below :), been taken on numerous outside strolls, continued to ask 7 zillion questions about anything and everything, and begun to do a bit more walker walking. So surreal to see your son, who you are used to seeing running amuck and up and down a field, a court, a baseball diamond, or sidewalk for that matter, be stricken to a walker……again. Hard to describe the feelings, but I know it’s all part of his journey, his story, his struggle, his triumph. In those hopeless moments I am reminded of Romans 8:28 – And we know that in all things the Lord works for the good of those who love Him and have been called according to His purpose. Elijah is a warrior and we want him to rage on in Jesus name.
Today Elijah said that we has really starting to miss home and his friends. Being away for him has been a social shutdown. He’s missing all the end-of-year fun and goodies w/his 5th grade class. Most days he’s ok about it and other days, like today, he shares that he’s anxious to get home….we all are.
I took 2 minutes and asked Elijah a few on the spot questions about his Perthes journey. You can give it a listen below. He’s quite candid. Yikes. Man, I love this wild boy. Crazy to think that God loves him even more. Continued thanks to each and every one of you who take the time to text, call, email, give, pray, serve, run our other 3 around town, and everything in between. You are our circle of support and we are grateful. Thank you for helping Elijah #tackleperthes one tackle at a time.