Elijah is getting stronger each and every day. He has remained very upbeat. He has had a couple setbacks with nausea episodes and an accidental slip of his leg off his wheelchair, which resulted in some major bleeding, BUT other than that he is improving like a beast. I knew my boy was a tough cookie, but his attitude and determination have even surprised me. He has never once asked why this has happened to him, or why now, or why not one of his siblings instead? 🙂 He has just attacked it. You never know what you’re really made of until you are tested, and although we are just at the beginning of the test, he has been exemplary. He has dug deep and I’ve fallen even more in love with him and his perseverance.
As we begin to think about transitioning back to life at home, which will undoubtedly have its own set of hiccups and hurdles, I wanted to share the massive machinery that is holding Elijah’s hip in place while making room for the ball of the hip to regrow, reshape, and hopefully restore and rejuvenate the blood flow. Up to this point, Elijah has not been shy about discussing this stinky disease or about showing off the external fixator. I hope when we get home he will continue to inform, educate, bring awareness, calm fears, and shed light on Perthes Disease. It is so rare that many people have never heard of it. Even most medical professionals know very little about it. Elijah will have the ex-fix on for 4 months and will be getting x-rays every 6 weeks for the doctors to monitor the progress. The ex-fix, while looks scary and weighs in at about 8 lbs. is super sturdy, large, and will give him the opportunity to be more mobile than the body casts Cincy Children’s wanted to put him in. Did I mention the ex-fix was HUGE on his little bird leg? It has 6 pins that holds it in place, and the pins must be cleaned daily. Pin infections are very common and I’m NOT looking forward to that first one, but trying to remain optimistic about it. In a stage of life when I’m just trying to get Elijah to brush his teeth daily and not eat his boogers, this new normal of life will definitely be an adjustment….for all of us.
It’s ever so rare for Shayne and I to just have 1 of the kids alone, so we’ve tried to just enjoy him, listen to him, marvel at him, love him. The other night we were asking him about his goals, hopes, plans. We asked him what he thought the Lord may want him to do with his life. He responded, “I think he might like me to be a pastor, a math teacher, or play in the NFL or MLB.” I don’t know what the Lord has for him, but I know he is equipping him, positioning him, and preparing him for what’s ahead. Please continue to pray for his recovery, his attitude, and our approach and strategy in supporting him #tackleperthes. Help us keep cheering our Tiger to that victory line. May he keep tackling with the eye of the tiger, baby! Absolutely grateful for your love. #tigernation